Tag: autism

  • Call for parents to empower autistic children’s inherent talents through support and guidance

    Call for parents to empower autistic children’s inherent talents through support and guidance

    Parents are being encouraged to provide support and assistance to their children with autism in order to unlock and maximize their inherent talents. The focus is on acknowledging and nurturing the unique abilities and strengths that autistic individuals possess. By offering the necessary guidance and encouragement, parents can help their children with autism to flourish and reach their full potential. The emphasis is on empowering parents to create a nurturing and inclusive environment that promotes the development of their child’s unique talents and abilities.

    Dr Susana Annan, Specialist Psychiatrist at the Tamale Central Hospital, expressed the need for parents and other caregivers of autistic children to provide their needs to help maximise their hidden potentials.

    She said children living with autism had some unique strengths and abilities, which when identified early, could help them lead more productive lives.

    She emphasised that “They are able to concentrate and stay focused on their tasks. They have a special eye for detail because of their great observational skills. They do well in learning with cues.”

    Dr Annan, who made the call in an interview with the Ghana News Agency in Tamale, said such children could become experts in what they did using methodical approach, analytical, spotting patterns, among others in handling their tasks.

    She said, “they are noted for their honesty, loyalty, commitment, tenacity and resilience.”

    She advised parents with autistic children to disregard various misconceptions associated with the condition and endeavour to provide their needs to enable them to harness their hidden potential.

    Autism in children is a neurodevelopmental disorder, which requires medical attention.

    It is often characterised by children avoiding eye contact, inability to respond to their names as well as repetitive movements such as flapping of hands, flicking their fingers and body rocking.

    Although there are no readily available statistics of children with autism in Ghana, the World Health Organization in 2021, indicated that about one in 160 children had autism worldwide while in the United States, it is estimated that about one in 59 children had autism.

  • Sia diagnosed with autism

    Sia diagnosed with autism

    Sia, the renowned singer and songwriter, has disclosed that she has received a diagnosis of autism, two years after apologizing for her portrayal of the condition in the film Music.

    In an interview with Rob Has A Podcast, known for discussing the US reality show Survivor, Sia expressed that her diagnosis has provided a sense of relief.

    “I’ve felt like for 45 years, I was like, ‘I’ve got to go put my human suit on’,” she said.

    “And only in the last two years have I become fully myself.”

    Sia, also known as Sia Furler, has gained fame as a singer-songwriter, with popular hits like Chandelier, Titanium, and Cheap Thrills.

    However, in 2021, she ventured into the realm of film-making with her debut film, Music, a musical drama centered around a woman who becomes the primary caregiver for her non-verbal autistic half-sister.

    The film sparked significant controversy due to Sia’s decision to cast the neurotypical actress Maddie Ziegler, known for her appearances in Sia’s music videos, in the lead role. Many criticized this choice, arguing that it overlooked the opportunity to cast an autistic actor who could authentically portray the character.

    Additionally, one particular scene in the film drew widespread anger. It depicted Ziegler’s character being subjected to a controversial restraint technique known as face-down prone restraint during a moment of overstimulation. This restraint method has been associated with physical harm and, in extreme cases, the risk of suffocation.

    These aspects of the film garnered significant backlash and raised important discussions about proper representation and the portrayal of individuals with autism in the media.

    At the time, Sia defended the film, saying it was “completely” based on the experiences of a “neuro-atypical friend”.

    However, after the film was nominated for two Golden Globe Awards in 2021, the singer issued a series of apologies on Twitter before deleting her account altogether.

    “I plan to remove the restraint scenes from all future printings. I listened to the wrong people and that is my responsibility, my research was clearly not thorough enough, not wide enough,” she stated at the time.

    She also promised that a warning card would be added to the film, saying that it “in no way condones or recommends the use of restraint on autistic people”.

    Maddie Ziegler and Kate Hudson star in Music, which was nominated for best musical/comedy film at this year's Golden Globes
    Image caption,Maddie Ziegler and Kate Hudson starred in Music, which was nominated for two Golden Globes

    At the time, the Australian singer did not allude to being neuro-atypical herself. But in her podcast appearance, she stated: “I’m on the spectrum, and I’m in recovery – there’s a lot of things”.

    The 47-year-old appeared on the podcast to congratulate Carolyn Wiger, a runner-up in the recent 44th series of Survivor.

    She had previously called Wiger her “favourite player”, and offered the single mother $100,000 (£80,900) to help with her financial difficulties.

    During her appearance on Survivor, Wiger’s quirky, unfiltered personality endeared her to many fans, some of whom asked whether she had been diagnosed with autism.

    She later responded that she is not on the spectrum, but has ADHD and is in recovery from addiction.

    On the podcast, Sia congratulated Wiger as someone who “didn’t put her human suit on. Who just showed up and was willing to be rejected, and to be the weird one”.

    “The kook in me recognises the kook in you,” she added.

    The behaviour she described, of learning and practicing certain behaviours to “fit in” with people around you, aligns with the concept of autistic masking.

    Psychologist Dr Emma Colvert previously described masking to the BBC as “things people do to hide or disguise aspects of their behaviour that might seem different to non-autistic individuals”.

    Sia, who is a recovering alcoholic, also responded to Wiger’s own struggles with addiction and recovery.

    “I think one of the greatest things is that nobody can ever know you and love you when you’re filled with secrets and living in shame,” she said.

    “And when we finally sit in a roomful of strangers and tell them our deepest, darkest, most shameful secrets, and everybody laughs along with us, and we don’t feel like pieces of trash for the first time in our lives, and we feel seen, for the first time in our lives, for who we actually are – then we can start going out into the world and operating as human beings with hearts, and not pretending to be anything.”

  • Today marks Autism Awareness Day

    Today marks Autism Awareness Day

    Autism Spectrum Disorder (ASD) or Autism is a complex condition that involves communication and behaviour challenges.

    It is considered a life-long disorder and can be a minor or a major problem where an individual needs full-time care and special facilities.

    Persons with autism are characterised by some degree of difficulty with social interaction and communication.

    Other characteristics are a typical patterns of activities and behaviours, such as difficulty with transition from one activity to another, a focus on details and unusual reactions to sensations.

    Health experts say autism starts form childhood and can be controlled when pregnant women take thier antenatal medications, attend antenatal regularly and avoid exposure to to air pollution particularly heavy metals and paticulate matter during pregnancy.

    The abilities and needs of autistic people vary and can evolve over time.

    While some people with autism can live independently, others have severe disabilities and require life-long care and support.

    Autism often has an impact on the education and employment opportunities of persons affected.

    The demands on families providing care and support to a person affected with autism can be significant,however societal attitudes and the level of support provided by local and national authorities are important factors determining the quality of life of people with autism.

    According to health experts, characteristics of autism may be detected in early childhood, but autism is often not diagnosed until much later.

    People with autism often have co-occurring conditions, including epilepsy, depression, anxiety and attention deficit hyperactivity disorder as well as challenging behaviours such as difficulty sleeping and self-injury.

    The level of intellectual functioning among autistic people varies widely, extending from profound impairment to superior levels.

    The United Nations General Assembly declared April 2 as World Autism Awareness Day to raise awareness about autism.

    This year’s World Autism Awareness Day (WAAD) raises much awareness on the contributions of persons with autism in the home, at work, in the arts and in policymaking.

    Studies show that, autistic people face discrimination and other challenges.

    As with all populations, autistic people have a wide range of talents and challenges that are often not recognised by the world they are born into.

    The levels of awareness and acceptance vary dramatically from country to country.

    As the world observes the autism awareness day today, the World Health Organization calls on countries to address the current significant gaps in early detection, care, treatment and rehabilitation for mental and neurodevelopmental conditions, which include autism.

    It also calls for counties to address the social, economic, educational and inclusion needs of people living with mental and neurological disorders, and their families, and to improve surveillance and relevant research.

  • Autism is not caused by demons or curses – Teacher

    A teacher at the Autism Awareness, Care and Training Centre, Grant Baiden, has underscored the need for the public to stop describing children with Autism as demons or spiritually cursed.

    He said autism is not caused by spiritual attacks and only ignorant persons who would make such arguments.

    Speaking on Frontline on Rainbow Radio 87.5Fm with care support and training children with Autism will be just like any other child.

    He indicated that there was a need for intensified campaigns to give the public more insight into autism as a condition.

    He also disputed assertions that autism is not contagious as some persons have claimed.

    He said it is also not true that persons who care for children with autism are prone to being autistic.

    Grant Baiden further noted that another misconception is that it is linked to intellectual disability.

    He said when diagnosed with autism at an early age, and with training and care, children will see tremendous growth through the years.

    Source: rainbowradioonline.com

  • Boy with autism found after Australian mountain ordeal

    An Australian boy who was missing for two nights on a mountainside in near-freezing conditions has been found safe and well, police say.

    William Callaghan, a 14-year-old with non-verbal autism, became lost during a family walk at Mount Disappointment, in Victoria, on Monday.

    His family had raised concerns that his inability to verbally communicate may hinder search efforts.

    He was found on Wednesday near the peak of the mountain.

    Rescuers said William had been located about 10 minutes off a bush track – he did not have his shoes but was wearing tracksuit bottoms and a hooded sweatshirt.

    It was not yet known if William had access to food, water or shelter on the mountain, located 80km (50 miles) north of Melbourne. Temperatures had neared 0C in the past two nights.

    He appeared to be “remarkably well for the time that he’s been out there”, said Insp Christine Lalor of Victoria Police.

    She told reporters he had been taken to hospital for monitoring, adding: “He’s alert, warm, eating and drinking and he actually asked for McDonald’s.”

    William’s mother, Penny Callaghan, thanked volunteer rescuers and police.

    “I can’t imagine what he’s been feeling and going through and I’m just so grateful and so relieved,” she told reporters.

    Police had asked locals to lay out feta cheese, peanut butter and other condiments in a bid to attract his attention. They were also encouraged to play the Thomas the Tank Engine theme.

    An autism advocacy organisation praised authorities for adapting their search.

    “We really need to adapt ourselves to the needs of autistic people rather than expecting them to behave as we do, or as neuro-typical people do,” Amaze chief executive Fiona Sharkey told the ABC.

    Source: bbc.com

  • Stunning Ghanaian model with autism gets featured on calendar to create awareness

    A beautiful Ghanaian model living with autism by name Yacoba under the auspices of the Afi Antonio Foundation has been featured on a prominent calendar to create awareness about the medical condition.

    The Afi Antonio Foundation is a non-profit organization run by Afi Antonio who was adjudged the most influential young Ghanaian under the Social Enterprise & Philanthropy in 2018.

    Yacoba, the beautiful model, has been used on the calendar to teach the public about some nitty grittes that come with being autistic.

    In addition, the calendars are made to raise funds to support persons living with autism as well as the underprivileged in society.

    Read:Meet the 15-year old Ghanaian model with autism

    The initiative has received positive reactions on social media with loads of individuals joining in to support the movement.

    Just recently, popular Ghanaian actor Vincent E. McCauley Jr. and Farida Bedwei, a staunch advocate for cerebral palsy who also lives with autism joined the movement by making great purchases to lend indicate his unflinching support.

    Speaking about the project of making both the desktop and wall calendars, the leader Afi Antonio said: “This is towards autism awareness and the model on the calendar is Yacoba, a model living with autism. And every page has a touching message [educating and giving real education] about autism.”

    She was quick to add that: The proceeds would be going to support the needy and persons living with autism.

    Read:Singer eShun supports children with autism

    This is a worthy course to support so even if you already have a calendar at home, just buy one to support a good initiative as each goes for 50 cedis” Some of the touching quotes on the calendar include:

    “What is autism? Autism is a lifelong developmental disability that affects how a person communicates with and relates to other people. It also affects how they make sense of the world around them.”

    “When you are frustrated because of the things I cannot do, just imagine how frustrated I am because I am unable.

    “Always Unique Totally Intelligent Sometimes Mysterious [AUTISM]”

    Source: Yen.com.gh